Welcome to the 4th Annual Rafi’s Run. We really appreciate your help in raising needed funds for the research that will cure the disease Rafi, and many kids like her, live with daily. To learn more about Rafi click here.
As of today, there is NO CURE or TREATMENT for Rafi, a 7 year old girl from New York City who has dealt with more in her short life than most adults deal with in a lifetime. Knowing this a group of friends got together in 2012 to make a difference. Rafi’s Run was started to raise money to fund the research for a cure for EB, “the worst disease you’ve never heard of.” To learn more about EB click HERE. We’ve teamed with Debra of America, the premier EB patient advocacy group, to fund the research.
Each year more than 600 people come to help find a cure for EB. Please join us again, or for the first time, as we continue our fight to cure those with EB.
Over the last 3 years we raised $600,000 for research.
Learn about Rafi’s Run funded research and all the work going on by clicking HERE.
The Rafi’s Run Committee and Rafi’s parents would like to thank everyone for their ongoing support. We especially would like to thank our Corporate Sponsors, those who donated goods and/or services and those who volunteered their time to make all of this possible.